Kennedy Krieger- 3 month wait for the Center of Developmental Learning

During my daughter’s regular doctor visit, we decided to ask the doctor about referrals for developmental centers. I have been very scared to put a label/diagnosis on my daughter’s development. However, I feel like I should do everything to ensure that my daughter can reach her utmost potential. I know that many people are misdiagnosed and I would hate for my daughter to be given an incorrect diagnosis. My hope obviously is that they tell me that she just has a speech delay (which I am aware of) and she has no other problem.

The doctor provided us a phone number for The Kennedy Krieger Institute (KKI). I did some extensive research on the Kennedy Krieger Institute and got some really good reviews. I contacted them last week and filled out an intake form and this is when they informed me of a wait list of 2-3 months! That seems like a century because I want them to call me like right now and schedule an evaluation for my daughter. I tried calling other development centers in the area and they had no wait time at all! I was tempted to go for the fast option but that does not necessarily yield great results. I have decided to be patient.

Right now as I write this my head is in a daze. It’s one thing to have kids and it is another to have a child who is struggling in some areas that are considered “normal”. I want the best for my daughter. I am afraid of what the harsh world has to offer. I have good days and bad days. Some days I cry my eyes out and ask God, “Why me?” but most days I am thankful to God for trusting me with my beautiful princess.

I was watching Joel Osteen on Sunday and once again, I got a very encouraging message. He was speaking about NOT wasting your pain. Basically…using what pains you to minister to people. His sermon was power packed from beginning to end and I saw it as a sign that God wanted my blog to indeed take a shift to address what I am going through. I have included the sermon in the link below:

http://www.cvvnet.org/m/index.php?cmd=view&id=139693

We all go through difficulties, setbacks and loss. In fact, pain is a part of life. Many people allow their pain to cripple them and keep them stuck, causing them to miss out on the next level that God was preparing them to go.This doesn’t have to be you. Let Joel teach you in this empowering message the comforting fact that nothing is a surprise to God. He wants to use your pain to grow you and prepare you to give birth to a new level of your destiny. If you’re dealing with a painful situation today, you will find encouragement. That pain is not there to stop you; it’s there to develop, prepare and increase you for the greater work God wants to do in your life. A new level is coming!

Developmental delays- changing the tune of my blog

It’s been a long hiatus and I feel like I have so much to write about, I need to pace myself so that I don’t rumble in my post. I have been really busy; I gave birth to my second child, a boy a few weeks ago. He has been a blessed addition to our family.

I would most of all want to share about something that my husband and I have been struggling with- my daughter’s development. I conceived my daughter in 2010 and I ensured that I ate 100% healthy throughout the pregnancy. I went ahead to even breastfeed her for 2 and a half years. I knew that I did everything on my end to give my child the best at her tender years.

Throughout her life, some family members were quick to judge on every aspect of her development. It’s as if they were speaking against her development. I know the power of words and I quickly spoke blessing and rebuked the words that they spoke upon my daughter’s life. I was keen to pray and surrender to God.

After a while, family members started throwing words such as “autism” and “ADHD”. I was so hurt by them because sometimes people are so quick to judge but so slow to help out. Throughout my daughter’s life, some family members have never interacted with her and as a mother, it’s painful.

We started to notice that my daughter was more hyperactive than most so we entered a county based program called infant and toddlers so that they could come to our home and assist us. When my daughter turned 3, she transitioned over to the PEP program. We saw great strides in her 1 year in school, but it took a lot of struggles and sometimes arguments with my husband because of what some of the family members spoke into my daughter’s life. My thing is…you are welcome to help and be positive in my daughter’s life but if you have nothing good to say…don’t pretend to be in her life! I am not saying that you lie to me, but just have a positive outlook for my daughter and be encouraging to us (my husband and I) as parents.

Right now my daughter is almost 4 and she has a lot of scripted language….echolalia. This is when she uses scripts from TV or repeats what you say. She uses her echolalia well, she does not use it out of context but instead uses what she has rehearsed or heard to communicate. When I was pregnant, I was wondering whether she understands that her brother is on the way. She then one day came to me and used the scripted language that she got from a cartoon. She held my stomach and sang, “A baby is coming to the family! It’s going to be daddy, mommy baby and me!!! I can’t wait to meet the baby!!!” I cried so much because only God knows the struggle that we have endured. I am obviously writing a truncated version of what we have gone through…but all in all let me assure you it’s been tough.

I am considering switching my blog theme to focus on the challenges with my daughter’s speech. I searched for Christian/Spiritual blogs about challenges with developmental delays but could not find anything. I hope that someone out there benefits from these candid blog entries that I will be sharing frequently.