Last week, my daughter had her IEP meeting. I was excited to see what progress she had made in school. Upon arriving, I met with my daughter’s teacher who directed me to the school nurse. I was wondering why but shrugged and thought it was a mere formality. The nurse then looked in her file cabinet for my daughter’s records. She started, “It looks like we are missing some records for your daughter. She needs a physical and also a shot” I looked at her, clearly perplexed, “Shot???” The nurse explained, “Our records indicate that she did not have the 2nd MMR shot- the booster. This is required for her to be admitted into kindergarten and also the ESY- Extended School Year” I froze and held my mouth from letting a blood curdling scream…MMR??? My mind raced as I knew for sure many parents attribute their children’s regression to the MMR shot that is typically given at 15 months. I then folded the paperwork and told her, “There must be some kind of misunderstanding but I will double check with my records and get back to you”
I went to the front desk and sat down as I awaited the teacher to take me to a conference room for the IEP. All her progress thus far may be halted by this “booster”. I just kept thinking of MERCURY, THERMOSIAL. I then just remember breathing in and just telling God to handle it. I just had this overwhelming sense of letting go and letting GOD.
The IEP meeting was a big success. My daughter is doing so well. The teachers are very optimistic about her future. The team is noticing everything we are noticing at home: decreased echolalia and decreased scripting, more social, ability to perform tasks has improved, more attentive, more aware etc. One thing that stuck with me is the fact that my daughter has started learning how to WRITE her name. She can spell and read almost anything but writing has always been long scribbles. The teacher stated that she has more control and is beginning to write her letters. I definitely believe that biomedical is helping with the fine motor skills.
Fast-forward to today when I was getting my daughter from the bus, the attendant proceeded to tell me that my daughter has been spitting all the way from school to home. I looked at them and told them there is nothing I can do. The bus driver and attendant are very good people but I just feel like it’s not their place for them to report stuff like this. I get it, they probably do not know anything about ASD…but I think it’s too much for them to give me “progress reports” when I really don’t want to hear. I had asked the teacher to tell them to refrain from giving me such “updates” but instead tell the teacher and from there, we can work a plan on how to reduce these behaviors. When they told me that my daughter was spitting, I told them, “Oh wow, there is nothing I can do at the moment and only pray” I know, I probably sounded strange, but basically I was telling them that it is OUT OF MY HANDS!
I think that is the approach that I have been sub consciously adopting. I am letting go of my frustrations and letting GOD take over. I am laying the troubles and worries on his feet and saying- LORD…here you go. I know I can’t heal my daughter, I can’t juggle all her treatments, I can’t afford them financially…but guess what GOD CAN deal with it. He has proven it time and time again especially when I was financially unable to fund the initial treatment for my daughter then he revealed to me GENERATION RESCUE. I proceeded to get a jumpstart on biomedical therapies. God is truly a wonder working God.
Psalm 55:22 New International Version (NIV)
22 Cast your cares on the Lord
and he will sustain you;
he will never let
the righteous be shaken.
Matthew 11:28 New International Version (NIV)
28 “Come to me, all you who are weary and burdened, and I will give you rest.
1 Peter 5:7 New International Version (NIV)
7 Cast all your anxiety on him because he cares for you.